So I stayed the night with Cashy and it defiantly brought back all the memories of being in the hospital, except this time were sharing a room. It's hard to get used to the thought of sharing a room, I guess we were spoiled in salt lake with private rooms! It was a rough night of sleep for Cashy and I, as there was a lot of beeping going on from the roomates side.
Cashy had a fever ranging from 101-103.4 last night and this am. They confirmed a positive blood culture this am. Gram positive. We wot know exactly what bacteria it is till later.
He's been really sleepy and his port a cath is really bugging him, he's also very weak. :( hurts my heart to see him like this. Effin cancer.
They held off on his first proton treatment today and will resume tomorrow, after having three docs say yes he needs treatment and two other saying no. So no it was, which is fine because he is a sick boy today.
His temp right now is 102.4, ugh. It really hasn't budged, I was hoping it would break soon as they now have him on vancomyecin, a heavy hitter.
So hopfully that will knock it out and they won't have to remove his port a cath.
It's so hard seeing all these Bald headed children so sick...it's heart breaking. It really is.
Cashys hair is starting to fall out again, we will have to get out the clippers, hair on your Binky isn't very nice. Lol.
I tried to give him a bolus of pediasure through his gtube,since he's not eating really at all the last two days. Well that didnt work and he threw up all over and soaked his port dressing. So we needed to change it and the nurse couldn't do it cause she was to busy.
So Mike and the tech helped me change Cashys dressing for his port. The poor guy, we had to hold him down and clean it off and it was really red and swollen and pussy looking where the needle goes in. So we reacessed it and hopefully it won't continue to bug him, it looked really sore. He is such a tough and brave little man. He's my little hero. Makes me just tear up thinking of what he has to go through, it's Just not fair and no baby should ever have to. He should be at home getting excited for Christmas with our tree set up nicely. But he has to worry about getting poked and pradded at, I truly wish I could take his place for him.
Keep him in your thoughts And prayers, and let's hope this infection is gone by morning and his fever stays away. Thanks everyone.